Testing and Sleeping

Back in this post I started shared how Abigail is undergoing some testing this summer due to lack of growth. She is fourteen and less than zero % on the growth chart. We've been monitoring this her whole life. There are issues possibly related to EoE and her eating issues but not for sure. She's monitored by specialists. This summer her endocrinologist decided to have further testing done with the possibility growth hormones. This is an extremely complicated issue and we are taking it one step at a time. Todays step: four hour test in the infusion center to monitor her growth hormones. She did amazingly well and I'm so proud of her. But she is so tired from this ordeal today (followed by a regular dr appointment)

It started off cozy and relaxing. She drew on her ipad and I read... 

I am loving this book so very much and am in a zoom book club every Thursday night. 

The medications given mimicked sleep so that they could monitor her hormones. They drew blood (from the IV) every 30 minutes. She fought sleep and mid drawing she would fall asleep, wake up, and fall asleep again. 

Until finally she couldn't fight it anymore and was in a deep sleep until it was over. 

Even when she came home - a few hours asleep on the couch. 

We are all looking forward to the answers this long test will provide as well as direction for the next steps.